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Publications

Editorial Ppublish 10 citations

PubMed: 37698721 DOI: 10.1007/s11606-023-08392-0

The Bias of Medicine in Sickle Cell Disease.

J Gen Intern Med 38(14):3247-3251

Authors: Daniela Anderson, Katie Lien, Chibueze Agwu, Phillip S Ang, Nabil Abou Baker

Affiliations

  • Tapestry 360 Health Center, Chicago, IL, USA.
  • Department of Family Medicine, University of Chicago, Chicago, IL, USA.
  • Pritzker School of Medicine, University of Chicago, Chicago, IL, USA.
  • Department of Medicine, University of Chicago, Chicago, IL, USA.

Abstract

Sickle cell disease (SCD) is the most common monogenetic condition in the United States (US) and one that has been subjected to a history of negative bias. Since SCD was first described approximately 120 years ago, the medical establishment has, directly and indirectly, harmed patients by reinforcing biases and assumptions about the disease. Furthermore, negative biases and stigmas have been levied upon patients with SCD by healthcare providers and society, researchers, and legislators. This article will explore the historical context of SCD in the US; discuss specific issues in care that lead to biases, social and self-stigma, inequities in access to care, and research funding; and highlight interventions over recent years that address racial biases and stigma.

MeSH

Anemia, Sickle Cell, Internal Medicine, Cells, Bias, Research

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