System Maintenance Notice

Please note that maintenance work is scheduled between 4 AM and 5 AM - CET. During this time, you may experience reduced performance. Thanks for your patience.

Publications

Journal Article Letter Epublish

PubMed: 39169371 DOI: 10.1186/s13023-024-03250-6

Navigating global collaboration: challenges faced by the international network on esophageal atresia.

Orphanet J Rare Dis 19(1):304

Authors: Frédéric Gottrand, Usha Krishnan, Anke Widenmann, Michaela Dellenmark Blom, Luigi Dall'Oglio, Rene Wijnen, Michiel van Wijk, JoAnne Fruithof, Daniel von Allmen, Tom Kovesi, Christophe Faure

Affiliations

  • Reference Center for Congenital Oesophageal Anomalies, Univ. Lille, CHU Lille, Infinite U1286, Lille, F-59000, France.
  • Discipline of Pediatrics, School of Women's and Children's Health, Faculty of Medicine, University of New South Wales, Randwick, NSW, Australia.
  • EAT, Federation of esophageal atresia and trachea-esophageal fistula, Stuttgart, Germany.
  • Department of Pediatrics, University of Gothenburg Institute of Clinical Sciences, Gothenburg, Sweden.
  • Digestive Endoscopy and Surgery Unit, Bambino Gesù Children's Hospital, IRCCS Rome, Rome, Italy.
  • Department of Pediatric Surgery and Intensive Care Children, Erasmus MC Sophia Children's Hospital, Wytemaweg 80, Rotterdam, 3015 CD, The Netherlands.
  • Department of Gastroenterology, Amsterdam UMC Location AMC, Amsterdam, North Holland, The Netherlands.
  • Department of Pediatric Surgery and Surgical Services, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, USA.
  • Children's Hospital of Eastern Ontario, University of Ottawa, Ottawa, Canada.
  • Department of Pediatrics, CHU Ste-Justine Research Centre, Université de Montréal, Montréal, QC, H3T 1C5, Canada.

Abstract

The International Network on Esophageal Atresia (INoEA) stands as a beacon of collaboration in addressing the complexities of this congenital condition on a global scale. The eleven board members, from various countries (USA, Canada, France, Australia, Italy, Sweden, Germany, and The Netherlands) and backgrounds (pediatric gastroenterology, pediatric surgery, pediatric pulmonology, nursing, and parents) met in a face-to-face symposium in Lille in November 2023, to identify challenges and solutions for improving global collaboration of the network.

MeSH

Rare Diseases, Esophageal Atresia