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Publications

Journal Article Epublish 4 citations

PubMed: 39544454 DOI: 10.3389/frhs.2024.1376695

Creating demand for unmet needs: Agile Storytelling.

Front Health Serv 4:1376695

Authors: Jade Mehta, Emily Long, Vidhur Bynagari, Fereshtehossadat Shojaei, Fatemehalsadat Shojaei, Andrew R W O'Brien, Malaz Boustani

Affiliations

  • Center for Health Innovation and Implementation Science, School of Medicine, Indiana University, Indianapolis, IN, United States.
  • Department of Informatics, Luddy School of Informatics, Computing, and Engineering, Indiana University, Bloomington, IN, United States.
  • Department of Medicine, School of Medicine, Indiana University, Indianapolis, IN, United States.
  • Center for Health Innovation and Implementation Science, School of Medicine, Indiana University, Indianapolis, IN, United States. Department of Medicine, School of Medicine, Indiana University, Indianapolis, IN, United States. Center for Aging Research, Regenstrief Institute, Inc. Indianapolis, IN, United States. Sandra Eskenazi Center for Brain Care Innovation, Eskenazi Health, Indianapolis, IN, United States.

Abstract

Introduction

The translational gap from the discovery of evidence-based solutions to their implementation in healthcare delivery organizations derives from an incorrect assumption that the need for change among executive, administrative, or clinical personnel is the same as the demand for change. For sickle cell disease (SCD), implementation of evidence-based guidelines is often delayed or obstructed due to lack of demand. This challenge allows for the persistence of resource limitations and care delivery models that do not meet the community's unique needs. Agile Storytelling is a process built on the scientific foundations of behavioral economics, complexity science, and network science to create local demand for the implementation of evidence-based solutions.

Methods

Agile Storytelling includes a design phase and a testing phase. The design phase converts the evidence-based solution into a minimally viable story of a hero, a villain, struggle, drama, and a resolution. The testing phase evaluates the effectiveness of the story via a series of storytelling sprints in the target local healthcare delivery organization. The efficacy of Agile Storytelling was tested in an iterative -of-1 case study design.

Results

Agile Storytelling was used in a large, urban, healthcare system within the United States to facilitate implementation of national SCD best-practice guidelines. After repeated failures attempting to use national and local data regarding the high societal need to hire a SCD-specific social worker, an Agile change conductor using Agile Storytelling was able to create demand for the new position within a week. This decision has ultimately improved patient outcomes and led to the adoption of a specialized collaborative care team for SCD within the health network.

Discussion

Agile Storytelling can lead to structured, effective, and informed storytelling to create local demand within healthcare delivery organizations.

MeSH

Research Design, Anemia, Sickle Cell, Solutions, Implementation Science

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