Publications

Journal Article Review Ppublish 13 citations

PubMed: 40070307 DOI: 10.1093/eurjpc/zwad400

Quality of life in heart failure. The heart of the matter. A scientific statement of the Heart Failure Association and the European Association of Preventive Cardiology of the European Society of Cardiology.

Eur J Prev Cardiol 32(11):912-925

Authors: Maurizio Volterrani, Geza Halasz, Stamatis Adamopoulos, Pier Giuseppe Agostoni, Javed Butler, Andrew J S Coats, Alan Cohen-Solal, Wolfram Doehner, Gerasimos Filippatos, Ewa Jankowska, Carolyn S P Lam, Ekaterini Lambrinou, Lars H Lund, Giuseppe Rosano, Marco Metra, Stefania Paolillo, Pasquale Perrone Filardi, Amina Rakisheva, Gianluigi Savarese, Petar Seferovic, Carlo Gabriele Tocchetti, Massimo Piepoli

Affiliations

  • IRCCS San Raffaele Roma, 00166 Rome, Italy.
  • San Raffaele Open University in Rome, Italy.
  • Azienda Ospedaliera San Camillo-Forlanini, Rome, Italy.
  • Onassion Hospital, Athens, Greece.
  • Centro Cardiologico Monzino, IRCCS, Milan, Italy.
  • Department of Clinical Sciences and Community Health, University of Milan, Milan, Italy.
  • Baylor Scott and White Research Institute, Dallas, TX.
  • Department of Medicine, University of Mississippi, Jackson, MS, USA.
  • Heart Research Institute, Sydney, Australia.
  • Universite Paris Cité, France.
  • Berlin Insititute of Health Center for Regenerative Therapies, Charité-Universitätsmedizin Berlin, Berlin, Germany.
  • Center for Stroke Research Berlin and German Centre for Cardiovascular Research (DZHK), partner site Berlin, Berlin, Germany.
  • Deutsches Herzzentrum der Charité, Department of Cardiology (Campus Virchow), Charité Universitätsmedizin Berlin.
  • Department of Cardiology, Attikon University Hospital, School of Medicine, National and Kapodistrian University of Athens, Greece.
  • University of Wroclaw, Poland.
  • National Heart Centre Singapore, Singapore.
  • Duke-National University of Singapore, Singapore.
  • Cyprus University of Technology, Cyprus.
  • Department of Medicine Solna, Karolinska Institutet, Stockholm, Sweden.
  • Division of Cardiology, Department of Medicine, Karolinska Institutet, Stockholm, Sweden.
  • Heart and Vascular Theme, Karolinska University Hospital, Stockholm, Sweden.
  • San Raffaele Cassino Hospital, Cassino, Italy.
  • Cardiology, Department of Medical and Surgical Specialties, Radiological Sciences, and Public Health, University of Brescia, Brescia, Italy.
  • Department of Advanced Biomedical Sciences, Federico II University, Naples, Italy.
  • Cardiology Department, Scientific Institute of Cardiology and Internal Medicine, Almaty, Kazakhstan.
  • University Faculty of Medicine, University of Belgrade, Belgrade, Serbia.
  • Serbian Academy of Arts and Sciences, Belgrade, Serbia.
  • Department of Translational Medical Sciences (DISMET), Center for Basic and Clinical Immunology Research (CISI), Interdepartmental Center for Clinical and Translational Research (CIRCET), Interdepartmental Hypertension Research Center (CIRIAPA), Federico II University, Naples, Italy.
  • Clinical Cardiology, IRCCS Policlinico San Donato, San Donato Milanese, Via Morandi 30, Milan 20097, Italy.
  • Department of Biomedical Science for Health, University of Milan, Via Festa del Perdono, Milan 20100, Italy.

Abstract

For most patients with chronic, progressive illnesses, maintaining good quality of life (QoL), with preserved functional capacity, is just as crucial as prolonging survival. Patients with heart failure (HF) experience much worse QoL and effort intolerance than both the general population and people with other chronic conditions, since they present a range of physical and psychological symptoms, including shortness of breath, chest discomfort, fatigue, fluid congestion, trouble with sleeping, and depression. These symptoms reduce patients' capacity for daily social and physical activity. Usual endpoints of large-scale trials in chronic HF have mostly been defined to evaluate treatments regarding hospitalizations and mortality, but more recently, patients' priorities and needs expressed with QoL are gaining more awareness and are being more extensively evaluated. This scientific statement aims at discussing the importance of QoL in HF, summarizing the most largely adopted questionnaires in HF care, and providing an overview on their application in trials and the potential for their transition to clinical practice. Finally, by discussing the reasons limiting their application in daily clinical routine and the strategies that may promote their implementation, this statement aims at fostering the systematic integration of the patient's standpoint in HF care.

MeSH

Quality Of Life, Heart Failure, Heart, Cardiovascular Diseases, Cardiology, Signs And Symptoms

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