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Publications

Journal Article Review Epublish

PubMed: 42388334 DOI: 10.1093/ehjopen/oeag100

Overview of methodology and characteristics of national acute coronary syndrome registries in high-income countries: a scoping review.

Eur Heart J Open 6(4):oeag100

Authors: Justine Chan, Natalie Ward, Judith Finn, Adil Rajwani, Jing Pang, Mikhail Alexander, Khang Duong Nguyen, Jyoti Sharma, Carl Schultz, Gerald F Watts, Markus P Schlaich, Christopher M Reid, Graham S Hillis

Affiliations

  • Cardiology Department, Royal Perth Hospital, 197 Wellington Street, Perth, WA 6000, Australia. School of Population Health, Curtin University, Kent Street, Bentley, WA 6102, Australia. Dobney Hypertension Centre, Royal Perth Hospital Research Foundation, Medical School, The University of Western Australia, Level 3, MRF Building, Rear 50 Murray Street, Perth, WA 6000, Australia.
  • Cardiology Department, Royal Perth Hospital, 197 Wellington Street, Perth, WA 6000, Australia.
  • Dobney Hypertension Centre, Royal Perth Hospital Research Foundation, Medical School, The University of Western Australia, Level 3, MRF Building, Rear 50 Murray Street, Perth, WA 6000, Australia.
  • Prehospital Resuscitation and Emergency Care Research Unit (PRECRU), Curtin School of Nursing, Curtin University, Building 609, 7 Parker Place, Bentley, WA 6104, Australia.
  • St John Western Australia, 209 Great Eastern Highway, Belmont, WA 6104, Australia.
  • School of Public Health and Preventive Medicine, Monash University, 553 St Kilda Road, Melbourne, VIC 3004, Australia.
  • Medical School, The University of Western Australia, 35 Stirling Highway, Crawley, WA 6009, Australia.
  • Curtin University, Kent Street, Bentley, WA 6102, Australia.
  • Cardiology Department, Royal Perth Hospital, 197 Wellington Street, Perth, WA 6000, Australia. Medical School, The University of Western Australia, 35 Stirling Highway, Crawley, WA 6009, Australia.
  • School of Population Health, Curtin University, Kent Street, Bentley, WA 6102, Australia. Interventional Cardiology Department, University Medical Center, 215 Hong Bang Street, Ward 11, District 5, Ho Chi Minh City, Vietnam.
  • Cardiology Department, Royal Perth Hospital, 197 Wellington Street, Perth, WA 6000, Australia. Dobney Hypertension Centre, Royal Perth Hospital Research Foundation, Medical School, The University of Western Australia, Level 3, MRF Building, Rear 50 Murray Street, Perth, WA 6000, Australia. Centre for Cardio-Metabolic Research in Africa (CARMA), Division of Medical Physiology, Faculty of Medicine and Health Sciences, Stellenbosch University, Tygerberg 7505, South Africa. Division of Medical Microbiology, Department of Laboratory-Medicine and Pathology, Faculty of Health Sciences, Walter Sisulu University, Private Bag: X1, Mthatha, 5117, Eastern Cape Province, South Africa.
  • Neurovascular Hypertension & Kidney Disease Laboratory, Baker Heart and Diabetes Institute, PO Box 6492, Melbourne, VIC 3004, Australia.
  • School of Population Health, Curtin University, Kent Street, Bentley, WA 6102, Australia.
  • School of Public Health & Preventive Medicine, Monash University, 553 St Kilda Road, Melbourne, VIC 3004, Australia.

Abstract

AIMS

The role of clinical quality registries is to collect structured observational data in routine clinical practice to monitor the quality of care provided to specific patient populations. There is currently no standardized methodology of how to establish registry platforms. The objective of this scoping review is to provide an overview of the methodology and characteristics of established national acute coronary syndrome registries.

METHODS AND RESULTS

Three electronic databases were searched to identify national registries in high-income countries collecting routine clinical data on adult patients with suspected and/or diagnosed acute coronary syndrome. Articles published from the year 2000 onwards that described the protocol and/or quantitative results of such registries located in 25 countries with the largest gross domestic product were included. There were 24 countries with an established national registry, of which nine are currently active. Inclusion criteria varied across these registries, with a predominant focus on either a suspected or confirmed diagnosis of acute coronary syndrome or myocardial infarction. The primary clinical outcomes measured were all-cause mortality and major adverse cardiovascular events during hospitalization, as well as at 30-day and/or 1 year time points. The main sources of follow-up data were hospital discharge records and administrative data.

CONCLUSION

Globally, acute coronary syndrome clinical quality registries share similar fundamental objectives of monitoring and improving or sustaining the highest quality of care. However, there is considerable variation in the design of national registries and better harmonization of fundamental issues, such as who is included, core data, and key outcomes, would be beneficial.

MeSH

Registries, Income, Acute Coronary Syndrome