English Abstract Journal Article Epublish
PubMed: 42585510 DOI: 10.1590/0102-311XPT198625
[From text to scene: legal devices and care trajectories in the adoption of children with disabilities].
Cad Saude Publica 42:e00198625
Authors: Luciano Silveira Pacheco de Medeiros, Thiago Ferreira Abreu, Luciano Garcia Lourenção, Giovana Calcagno Gomes, Clarice Alves Bonow
Affiliations
- Universidade Federal de Pelotas, Pelotas, Brasil.
- Universidade Federal do Rio Grande, Rio Grande, Brasil.
Abstract
This study aimed to analyze, through Critical Discourse Analysis, how five legal devices are activated, blocked, or reconfigured in the care trajectories of adoptive families of children with disabilities and with what effects on participation, predictability, comfort and continuity. This is a qualitative, analytical-descriptive study; with 11 caregivers. Semi-structured face-to-face interviews were conducted between 2023 and 2024, transcribed and analyzed by the three-dimensional model. It was found that normative texts enter the scene through practices and statements that sometimes unlock, sometimes erode rights. Strategies of blocking, gatekeeping, bureaucratization of the difference and neutralization by the report were identified - associated with the drop in markers; and low-cost mediations - bridge professional, light protocols, transparency of queues and reasonable adjustments agreed upon - associated with the increase in markers. Variations appeared by family arrangement and institutional scope. The re-textualization of the provisions depends on the definition of the situation and the negotiation of roles; when affiliation is publicized and coordination exists, paths are shortened and anxieties decrease; when the revolving door based on a report prevails, rescheduling and "new beginnings" multiply. It was concluded that the caregiver matters, but how the network responds matters just as much. It is recommended to institute a bridge professional, co-construct light protocols and reasonable adjustments, and ensure transparency of queues as a minimum infrastructure to transform a right provided for into a right lived; It is suggested to expand scenarios and include professional voices in future studies.
MeSH
Caregivers, Public Health, Disabled Children, Child